CMTA
search:
To create a world without CMT stamp
Click here to buy STAR stamps and help create a world without CMT

 

Hot Links:

Join the CMTA!

2010 Swim for the Cure

CMTA "Circle of Friends"

CMTA Strategy to Accelerate Research

$350K Board Challenge

New on Parents' Page: Our CMT Experience and the Plan We Have to Help Stop It...

New on Kids' Page: Being a CMT Kid

California Patient-Family Conference DVD

Site Reference Guide

 
 
 

Media Room

2010 Press Releases
2009 Press Releases
2008 Press Releases
CMT FAQs
CMTA Logos
Physician Bios/Photos
Patient Bios/Photos
Photo library

Contact

Shannon Baker

SBaker@gmddadvertising.com
412.381.5400, ext. 107
 

 

 

Press Kit

Below you can download biographies and photos of key scientists involved in the CMTA Strategy to Accelerate Research™, biographies and photos of CMT patients, CMTA logos, and other CMT-related photos. If you have any press related questions, please contact Shannon Baker.

 

2010 Press Releases

May 2010
Third Annual Honor A Star Be A Star Gala to Honor Those Leading the Fight Against Charcot-Marie-Tooth Disorder
 
 
CMT Clinic at Wayne State University School of Medicine to Host 9th Annual CMT Charity Golf Outing on June 21, 2010—Community Fundraiser to Benefit National CMT Center of Excellence
 

2009 Press Releases

August 2009
Terrelle Pryor and OSU Football Organize Charity Event for Father's Rare Disease—Proceeds from Second Annual Uplifting Athletes Charity Video Game Challenge on August 5, 2009, Go To CMT Disease
 
June 2009
Eight-Year Old with Little-Known Disease Rallies Community to Help Find Cure—GCC’s Rock ‘n Run for CMT Research 5K Race and Family Festival, Sunday, June 28
 
May 2009
Charcot-Marie-Tooth Patient/Family Conference on Saturday, May 30, 2009, from 8 a.m. until 4 p.m. at Kasych Family Pavilion at Lehigh Valley Hospital-Cedar Crest in Allentown, Pa.
 
  CMTA’s “Honor A Star. Be A STAR.” Gala Generates Over $350,000 for CMT Research
Event Honoring Joe and Sue Paterno in New York City Raises Money for STAR™ Initiative
 
April 2009
Charcot-Marie-Tooth Patient/Family Conference on Saturday, April 18, 2009, from 8 a.m. until 3 p.m. at Shriners Hospital for Children in Erie, Pa.
 
March 2009
Joe and Sue Paterno to Be Honored for Their "Lifetime of Achievement" at the Honor a Star. Be a Star. Gala Hosted by the CMTA at New York's Mandarin Oriental Hotel, April 29, 2009
 
February 2009
CMTA Presents "Get Jazzed for a Cure" with Father John D'Amico at the Villanova Conference Center, Saturday, March 14, 2009
 

2008 Press Releases

October 2008
Charcot-Marie-Tooth Association Expands Board of Directors
 
  Charcot-Marie-Tooth Physician/Patient/Family Conference, November 8, 2008, at Mitchell Park Community Center, Palo Alto, CA, Will Cover the Management of CMT, the Latest Medical Advances and the Current Research to Treat and Eventually Cure the Most Commonly Inherited Neurological Disorder
 
September 2008
Burlington Community Rallies Around Six-Year-Old Girl with Incurable Disorder to Raise Research Funds
 
  Charcot-Marie-Tooth CMT) Disorder Support Group to Meet at Beth Israel Deaconess Medical Center—Local Resident Spearheads Outreach Efforts for Boston Area CMT Patients
 
  RI Community Rallies for Wheelchair-Bound Six Year Old with Little-Known Disease: The Brandon Motta 5K Race and Fun Walk Scheduled for Saturday, September 20
 
August 2008
A Gold Medal Performance—Grinnell Student Swims Marathon to Raise Awareness and Inspire Others
 
July 2008
South Kingston, RI, Neighbors Unite to Raise Research Funds for Local Girl with Incurable Disorder
 
June 2008
Baltimore Native “Swims for a Cure” for Charcot-Marie-Tooth Disorder During Chesapeake Bay Challenge
 
May 2008
Local Girl with Big Voice and Incurable Neurological Disorder to Perform at Moving Wall Closing Ceremony: 12-Year-Old’s Rendition of American Tears Raises Funds for Promising Charcot-Marie-Tooth Disorder Research
 
  National Neuropathy Awareness Week: Strategy to Accelerate Research (STAR™) for Charcot-Marie-Tooth Disorder May Hold Promise for MS, MD and ALS
 
April 2008
Stars Come Out to Honor Hall of Fame Coach Joe Paterno at CMTA “STAR” Dinner June 11 in State College
 
March 2008
STAR™ Initiative Unites International Scientific Community to Seek Treatment and Cure for Little Known Disorder.
 Return to top

CMT FAQs

March 2008
Charcot-Marie-Tooth Disorders—FAQs about Symptoms & Treatment
 Return to top

Physician/Scientist Bios/Photos

Michael E Shy, MD  Bio  Photo
Steven Scherer, MD, PhD  Bio  Photo
 Return to top

CMT Patient/Family Bios/Photos

Amy de Silva  Bio  
Amy Photo 1
JPG or EPS
Amy Photo 2
JPG or EPS
Amy Photo 3
JPG or EPS
Shawn Sullivan  Bio
Cathy Power  Bio  Photo
 Return to top

CMTA logos

CMTA Logo EPS or JPG
CMTA STAR Logo EPS or JPG
 Return to top

Photo library

Below you can download photos used by CMTA in either a low resolution JPG or high resolution EPS format.

 
Research helps unravel the mystery of CMT
JPG
or EPS
Orthotic devices help stabalize gait
JPG
or EPS

Gait abnormalities are common in CMT patients
JPG or EPS

A nerve conduction study is performed to diagnose CMT
JPG
or EPS
Knowing a patient's personal history is important in diagnosing CMT
JPG
or EPS
A patient undergoes a nerve conduction study
JPG
or EPS
A patient undergoes a test of manual dexterity
JPG or EPS
Research helps unravel the mystery of CMT
JPG
or EPS
Research helps unravel the mystery of CMT
JPG
or EPS
Customized orthoses are available for children too
JPG
or EPS
CMT is passed from generation to generation
JPG
or EPS
Illustration of Healthy Nerve & Damaged Nerve
JPG
or EPS
Return to top

 

   
 
   
Ask the Experts Publications Daily Living Aids Discussion Forums Research CMT Database
Events Contact Privacy Sitemap
Charcot-Marie-Tooth Association 2700 Chestnut Street, Chester, PA 19013
Toll-Free (US Only): 1-800-606-2682 Phone: 1-610-499-9264 Fax: 1-610-499-9267
info@charcot-marie-tooth.org
© 2006 - 2010 Charcot-Marie-Tooth Association. All Rights Reserved.